Friday, March 14, 2008

We're Home!!!

One day late but that's ok; at least he was able to go home today. Surgery really wanted him to eat and drink like a normal kid should before they sent him home but ICS kept telling them that he is doing better than they usually expect from kids with Neuroblastoma and that they should send us home over the weekend so we can have a short break. The deal they made was that he needed to drink at least 40 cc's per hour (a sippy cup in 4 hours.) Normally that would not happen so I had to keep on Cohen to get this done. He was not happy but he understood that if he drank his juice he'd get to go home.
He had his GFR (kidney test) today but it didn't work so he needs to do it again. It's not a big deal but it is just time consuming. He has to have another iv placed so they can inject some liquid in it, do a 2 min scan, have blood taken 1 hour later, and then again 2 hours after that.
His pathology test came back yesterday. I was given a copy of it but I can not understand it at all. The Doctor said that the outer part of the tumor out was tissue (which is good because it tells us that he got most of the tumor.) Also the tumor on the lymph nodes is dead (the surgeon said that if he left any behind it would have been on the lymph nodes.) Some of the tumor had live cells but they've matured a step higher than they were. Both the Surgeon and his Oncologist were very pleased with the results. YAY!!!!!!
Kelsi, my mom, and I went to Disney Princesses on Ice, thanks to Energy Solutions for donating tickets to Intermountain Healing Hearts. We had so much fun. Kelsi loved it. That is definitely something we need to do more often!
If you can't see the appointments on the calendar will you let me know? I will try to figure out how to make everyone able to view it.


Lizzybo said...

I'm so glad he's home and that things are going so well! :)

Thank you for doing such a great job keeping this site updated.

BTW, I can't see the appointments on the calendar. :(

Thanks so much for your comments on my blog. Please try to keep my little secret for a few more days - but if you've already said something, that's okay. We just aren't sure about things right just yet. ;)

Alison said...

I'm glad the pathology report was so good!!! It was great to see you and Chris and your kids this last week. I need to come visit you more often! I'm really close, so if you need anything, give me a call! 801-403-9950

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