Monday, March 31, 2008

RSV again...

Cohen spiked a fever last night so they did cultures and tested his snot. He is positive for RSV so they took an x-ray (which shows no cloudiness in his lungs) and are giving him antibiotics. They are also going to start a respiratory treatment which will run during the night for 2 hours at 9pm 2am and 7am. We can't be in the room during that time and 45 min. after. Poor Cohen. He's been through so much already and they said he'd probably catch something during this time but I didn't think it would be so soon. I just hope that it doesn't get any worse. RSV is scary especially with him having no cells to fight it. He's been down the last few days. Playing only a little and not really eating at all. They stared TPN and Lipids two days ago. I don't think he's lost any weight.
Kelsi sats have been really low the last few days. As low as 75 and as high as 84. She was at 78 at 5:00 today so I am going to call Dr. Cowley's secretary and pick her mind tomorrow morning. I think they may put her on oxygen before they do (or decide to do) the next procedure. I definitely think they close the hole in the Fontan because there are only a handful of times when her sats are above 85.
Well thanks again for all of your prayers. It's crazy that everything is happening in such a short period of time. One day at a time right. Also please pray for our friends baby Gracie. She also has a heart condition and is having a hard time. Her link in on the right under heart buddies.


Kenny & Michele Kingsford Family said...


Wow, just when you think you can't handle don't have a choice! You are so strong and have such a great attitude! You inspire me! Please know that I think about you often and keep both of your kids in my prayers.


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