EVERYTHING LOOKS GREAT

Yay!!! The cancer still hasn't spread anywhere!!! In December the bone scan showed possible tumor on his cheek and skull but this time it didn't show up anywhere at all. We haven't received results back on the MIBG that was done today but most likely it will have the same results. The tumor has shrunk 1cm on each side. Dr. Wright said that it is normal for it not to shrink much after it already shrank a lot. His echo looked good. We are set for surgery next week. I am so relieved that everything still looks good. Dr. Wright said that Cohen is the best neuroblastoma patient that she has had in a long time. What a wonderful thing to hear from a doctor who deals with many cases! Thank you so so so so so so so much for keeping him in your prayers.

Kelsi had her doctors appointment today. Dr. Cowley was booked so she saw Dr. Tristani instead. He said that everything looks good and that it is ok for her to sat where she is. The Fontan that they did in September has a little hole that the mixed blood still flows through. He said that when her blood doesn't flow through there her sats are higher and when it does her sats are lower. She was sating between 81 and 85 today. He is going to talk with Dr. Cowley and see if they are going to close the hole in the cath lab or leave it open. The risk in closing it could put to much pressure in her lungs. So we will see. Thank you for keeping her in your prayers as well.