Our brave little man

Cohen has been doing really well since he came home from the hospital 2 Saturday's ago. He's still on TPN and lipids but he's eating more food and drinking on his own. The last hospital stay wasn't too rough on him. The first days were hard but the last weren't too bad. He didn't seem to be in too much pain after the antibody was done for the day. He only needed oxygen the first night and came home a day earlier than the other times. He will start the IL2 next week and then he'll have the combo of the IL2 and the antibody the week of the 13th (that's the one that hit him hard in August.)
Here are a couple of picture from this last hospital stay. He absolutely loves his elmo and look at that hair.Thank you so much for all of your thoughts and prayers.

Sorry for the slow postings

I just haven't been myself lately. We're going through so much it's been kind of hard on me. :o)
Cohen is doing great. Everything went really well on Thursday. He went in at 9:30 and came out an hour later. We were out of the hospital by 2:30. The site bled a little more than the last two times but nothing to worry about. He just slept the rest of the afternoon and was playing around by dinner. I love how he just gets back up and acts like a normal kid. It was really hard last month when he wasn't himself.
He was suppose to start the antibody therapy today (painful study drug) but the medicine was stored wrong so it went bad. Rather than staying at the hospital for no reason they sent him home and he will start tomorrow. It'll run for 4 days like always and he'll go home once he's recovered.
Thank you so much for all of your thoughts, prayers, and comments. We appreciate it.

Surgery will now be on Thursday

Unfortunate Surgery...

(Chris here) Cohen's central line sprung a leak last night when we were flushing it so we had to rush him to Primary's. They repaired the line but one of the lumen's clotted. They put some TPA in the line to try and break it up. After hours of waiting it didn't work. So they sent us home and told us to contact Home Health to try again that afternoon. The nurse practioner called us in the morning and had us try to flush the line. After that didn't work she had us come back up to the hospital. They ended up repairing it again to see if the glue they used may have clogged it. While repairing it they figured out the glue was not the problem. They figured it was just super clotted. So guess what..... Surgery to replace the line sometime on Monday.

Update: Surgery will now be on Tuesday.